Metabolic Disorders

International network. Founded 1996. Support for parents of children diagnosed with congenital disorders of glycosylation, an inherited metabolic disease affecting all body parts, especially the central and peripheral nervous systems. Support is attained primarily online. Group also provides bi-annual newsletter, phone support, advocacy, information and referrals. Bulletin board for families to interact with questions, comments and updates.
Write:
CDG Family Network
c/o Cynthia Wren-Gray, President
P.O. Box 860847
Plano, TX 75074
Voice: 1-800-250-5273
Fax: 903-640-8254
Website: http://www.cdgs.com
E-mail: cdgaware@aol.com
Verified: 12/15/2009

Online. 759 members. Founded 2000. Mutual support via discussion forum for those affected by the metabolic disorder trimethyaminuria (also known as fish odor syndrome, fish malodor syndrome and stale fish syndrome). Trimethylaminuria is an inability of the body to break down trimethylamine, consequently trimethylamine accumulates in the body and is then released in a person's sweat, urine and breath, giving off a strong fishy odor.
Website: http://health.groups.yahoo.com/group/trimethylaminuria
Verified: 9/29/2010

National. Founded 1986. Supports DNA research, looking for mutations in DNA, both nuclear and mitochondrial, that might cause autistic/epileptic symptoms in patients. Purine metabolic diseases include gout, purine autism, Lesch-Nyhan syndrome, ADA deficiency and others. Offers publications and reference information including a purine-restricted diet.
Write:
Purine Research Society
c/o Tahma Metz
5424 Beech Ave.
Bethesda, MD 20814
Voice: 301-530-0354
Fax: 301-564-9597
Website: http://www.purineresearchsociety.org
Verified: 12/8/2009

International network. Provides support and information for individuals and their families dealing with over 700 metabolic conditions. Newsletter, phone support, pen pals, annual conference, and befriender network. Small administration fee required for posts.
Write:
Climb Building
176 Nantwich Rd.
Crewe, UK CW2 6BG
Voice: 44 870 770 0326 (day)
Fax: 44 870 770 0327
Website: http://www.climb.org.uk
Verified: 9/27/2010

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Answer:

Your level is currently NormalHigh (hyperglycemia).Low (hypoglycemia).

If the level is below 70 and you are experiencing symptoms such as shaking, sweating or difficulty thinking, you will need to raise the number immediately. A quick solution is to eat a few pieces of hard candy or 1 tablespoon of sugar or honey. Recheck your numbers again in 15 minutes to see if the number has gone up. If not, repeat the steps above or call your doctor.

People who experience hypoglycemia several times in a week should call their health care provider. It's important to monitor your levels each day so you can make sure your numbers are within the range. If you are pregnant always consult with your health care provider.

Your blood sugar level is slightly high. You should call your health care provider and ask if laboratory tests to check for diabetes are needed. If you are pregnant always consult with your health care provider.

Congratulations on taking steps to manage your health.

However, it's important to continue to track your numbers so that you can make lifestyle changes if needed. If you are pregnant always consult with your physician.

Your level is currently normal. However, if you are concerned about diabetes speak with your physician. There may be other risk factors that increase your risk for diabetes.

Your level is high if this reading was taken before eating. Aim for 70-130 before meals and less than 180 two hours after meals.

Even if your number is high, it's not too late for you to take control of your health and lower your blood sugar.

One of the first steps is to monitor your levels each day. If you are pregnant always consult with your physician.

Your blood sugar level may be high, depending on when you last ate. If you have not eaten for at least 8 hours, your blood sugar should be less than 100. If you've eaten within the last 2 hours, your blood sugar should be less than 140. You should call your health care provider and ask if you need laboratory tests to check for diabetes. If you are pregnant always consult with your health care provider.

Blood sugars consistently above 180 warrant prompt medical attention.

Even if your number is high, it's not too late for you to take control of your health and lower your blood sugar.

One of the first steps is to monitor your levels each day. If you are pregnant always consult with your physician.

Your blood sugar level is high. You should call your health care provider and ask if laboratory tests to check for diabetes are needed. If you are pregnant always consult with your health care provider.

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